Tuesday, May 20, 2008

Screaming to be heard.

Do you ever feel like you are the only person in the world?

I remember a dream I had once in which I was standing next to a massive divide in the earth. It was so huge that I could barely see the other side and looking down I could see no bottom to the chasm below me. The Grand Canyon would be quite small by comparison. I remember seeing that there were people on the other side, so so far away. I yelled as loudly as I could, trying to get their attention, to get them to see me. But my small voice was lost in the immensity of space and they took no notice of me at all. I was the only person on my side.

That's how I feel sometimes as I try to talk to my loved ones about my illness. Everyone has a lot of encouragement, saying that they know such-and-such a person who cracked down on their diabetes and conquered it through their eating and exercise, as if it is so simple. With a prelude like that, how can I talk about how complicated it actually is for me and how I am trying so hard and failing for no reason that I can figure out?

It's unfortunate that those grandparents and older aunts got diabetes, of course, but it seems unfair to me that most of them got to fly through youth with a healthy body weight and bear several children before the disease struck. I, on the other hand, have had symptoms since I was twelve, have been unable to maintain a body weight below 200 pounds no matter how hard I worked and deprived myself of every food I loved, and any pregnancies I have will be extremely risky and will most likely end in miscarriage if all the articles I've read online are true.

So it's wonderful that everyone knows someone who's conquered diabetes, but at least they got to live first. I feel like my entire future will just be a battle to maintain "healthy" blood sugar levels, which right now feels impossible. I try everything I'm supposed to and I'm not anywhere near being in control of this thing. I'm 22 and I get to look forward to losing my vision, having my feet amputated and having heart attacks. What a bright horizon!

Do you think there's a way to get my voice all the way across the chasm so that someone will hear me? It's gets lonely over here.

Monday, May 12, 2008

Good news!

Let us rejoice! My cute husband has gotten a great job! It's pretty much doing the same sort of stuff that he has done before, working at a group home, and that's good because he finds that line of work fulfilling. He starts tomorrow, and that is exciting! Paul has been applying at millions of places (it has seemed like millions) and now it has finally happened.

Wednesday, May 7, 2008

Quicky.

So I'm back at the library again as a page. Four days after my temporary job at the bookstore ended, my old boss called and asked me to come back to the library. So I jumped at the chance, and it's like a blast from the past. The only sad thing is that almost all of my old friends from before are now gone. I guess it isn't too great of a job, really, if you want to make real money, but it's the most that I could possibly handle right now. Life is all about money no matter how sick you feel.

Sunday, May 4, 2008

The garden.

Paul and I have been growing our first garden, and it is so fun to see all the plants finally sprouting. They took three times longer than the seed packets said they would, so we were beginning to feel like failures. Outside, the turnips were the first up and we thought they were clover that suspiciously grew in a straight line. Within a week after, the beets, radishes, and peas showed their little faces. We have yet to see the parsnips and carrots, but we hope they decide to come around as well. Inside, in plastic cups, we were excited when the first of the broccoli seeds sprouted and it has been followed by several more. That first one is almost four inches long now and too skinny to hold itself up. Until today, the other indoor ones had remained hidden. This morning, I found that the yellow crooked neck squash and the tomato had both sprouted and this was very exciting. Now we're only waiting on the zucchini and the peppers. It will be really cool when we get to harvest all this stuff and feast on its bounties. Gardening more enjoyable than I thought it would be!

Thursday, April 24, 2008

My miracles.

One thing that's hard about blogging is that I struggle to organize my thoughts into just one topic to write about. Maybe I should make a list: my job, my plans, my husband and his plans, our garden, my novel, my nebulous idea that might just become a novel, my endless blood sugar roller coaster, my new church calling, the quirky but great movie I saw last night, and on and on. And there's just so much to life. I used to write for several hours a day and I always felt there was never enough time or paper or words to do justice to all that is out there (or in my head, whichever the case may be).

So how can I update you on what has happened since I last wrote? I think I have never had so much worry in all of my life, but I have also have never felt so strongly the Lord's love for his children. "Love for his children" sounds like a generic statement, but it isn't really. It's such a specific thing.

There was a day last week when I had to go fill one of my presciptions and we had to make the choice between getting the medicine and paying our car insurance. Our policy had expired and if we didn't renew it, we simply wouldn't be able to drive our car anymore. Not that it would be the end of the world, but it was a hard decision to make. I felt like I was being selfish, worrying about myself more than "us," but we made our minds and went to Rite Aid.

When I went to pick up my medicine, the woman behind the counter scanned the paper envelope with the medicine in it and said, "That will be eight dollars."

I looked up in surprise, half-irritated that she had scanned the wrong thing. My medicine cost more than ten times that amount. I said, "What? Really?"

"Um, yes," she said, looking at me curiously, "eight dollars. You are Jessica Robbins?"

I nodded, but didn't believe. "Eight?" I said incredulously, "Are you sure? That's metformin?"

"Yes." she said, "Another pharmacy is having a sale and this is a price match. . . You do want it, don't you?"

I almost started crying right there on the spot. I just laughed and pulled out eight dollars. "Of course I want it!"

So I went running out into the parking lot and we went straight to the car insurance place to renew our policy.

I don't know if it all sounds as miraculous as it was, but I had been so stressed about all my stupid expenses, up all night sick with worry so many nights in a row, trying to figure out some way to make it happen. And just like that, the Lord took it right out of my hands.

And that's just one miracle of so many I've seen these past weeks. It hasn't been a picnic trying to hold down a job when my blood sugar skyrockets and plummets several times a day regardless of how I eat. One day, I was afraid to move because my blood sugar was so low that I was seeing flashes of white. I was at work being trained and right in that desperate moment, some woman showed up and walked right up to me with a plate in her hand. On the plate were samples of highly sugary energy bars. The sample shot my blood sugar up to where it needed to be for me to get through the shift. I knew without a doubt that someone was watching over me.

It just amazes me how aware of my life my Savior is. I don't think there's any part of it that He doesn't care about.

Well, lest I worry anyone, the semester has just ended for Paul and me, my job ends tomorrow, and Paul's job starts as soon as possible. My dear love has pulled off lovely straight A's in spite of all the stress and he's been applying for jobs like crazy. He's got to find something that will give him enough hours and a high enough wage to support me because I'm not working again until I can get my condition under control. (Frankly, I'm a useless worker these days.) We made a killing at the textbook buyback and between that and a yard sale, we will happily be able to pay our rent for May! I'm sure something good will happen between now and my next metformin refill so we'll be able to get that too.

After all, we're not in this thing alone.

Friday, April 11, 2008

Honest for once.

So, here is another day of the Chronicles of Jessio. A blog with that title makes me want to write about exciting, interesting, silly, or hilarious things. It seems that all my stress has made my mind become very serious and when I open the laptop, I can't think of anything that would entertain anyone. It has all become almost a blur of frustrations and days stacked upon days in which nothing particulary improves.

Do I sound like a pessimist? Well, for once I just want to be honest! I am sick and each day is difficult and I can never stop worrying about how we'll pay for my meds, for my doctor visits, for my test strips when we have no insurance and no way to get it. But no matter how many times I have considered stopping my treatment (which is almost every day) I come back to the conclusion that I am too afraid of what will happen if I do. I am terrified of those high blood sugar levels and endless nausea and feeling like I'm starving to death. I don't want it all back, but I feel like it has all been a trade for different miseries.

But I always have Paul and he is more nurturing and sweet than I could have dreamed. He loves me so much and is patient every day with me. We only have about two weeks now to the end of school and then he will start working again. Cross your fingers that he will be able to get medical insurance. There are a few different jobs he's applying for and he's still looking for others too so he can find something really good. He has done very well this semester and has shining A's to prove it. I'm proud of him for working hard in school and improving his chances of being accepted to graduate schools this coming fall. Won't life be swell when he has a PhD and medical insurance is no longer an issue?

I am strained and frustrated and exhausted, but I'm sure that things will somehow work out. I still remember what I learned in Primary.

"Why did we come to earth, children?"

"To be tried and tested!"

"And why is that important?"

"To see if we really love Heavenly Father."

Well, I do love him and I hope all this will somehow show him that I do. I don't know if honesty in blogging will make for a very popular blog. (People generally seem to like a lot pictures and humor.) But I don't care. This is my life right now and while I'm living it, I wanted to write about it.

Sunday, April 6, 2008

A Conference Thought.

Well, Conference is over! I looked forward to it with excitement and now it has passed so quickly. One of the last talks, by M. Russell Ballard, was about young mothers and ways that we can all help them. It was a really good talk and I was struck by one thing he said. I didn't write down the exact quote, but it was something along these lines: A woman who is not being nourished herself has much less to give to her children. He talked about mothers finding time alone to cultivate talents and grow.

I'm not a mother yet. That's one adventure that hasn't hit me yet, but I like the principle. Giving to others is wonderful and service undoubtedly builds love. But when your personal needs are not being met, you cannot be your best self to give to others. It's hard for a starving person to think about anything but getting the food they need. Similarly, if your life does not fulfill all of your personal and emotional needs and dreams, you will not be able to give your full attention to the people in your own life. You won't be the best version of yourself.

So, of course, this all applies rather directly to me. There are things I love to do that I NEVER do. Why don't I draw anymore? Why don't I sing? Those things I love and they refresh me and help me face life in a more relaxed way. It's stupid to not set aside a little time each day to do these fulfilling things. Then I can be a better happier me and it will be easier for me to care about others and feel satisfied. How can you spread happiness if you don't have it?